September - Alopecia Areata Awareness

 
Look at Us!
It’s what the alopecia areata community is telling friends, neighbors, co-workers and anyone else who can hear their voices this fall. It’s the theme of this year’s Alopecia Areata Awareness Month which is in September. It’s pride in who they are, what they have accomplished, and where they are headed. It’s the alopecia areata community staging family-friendly awareness events across the country such as baseball games, jeans days, walkathons, bowl-a-thons, and more. It’s kids with alopecia areata, too often subject to bullying, being reminded of their own self-worth. It’s adults with the disease, too often feeling alone, being reminded there are others, many others, just like them, not only in this country but around the world. It’s people with alopecia areata driving the future of their condition by enabling researchers to look at them from the inside.

 

This can only be accomplished by encouraging more people with alopecia areata to contribute their information to the HIPAA-compliant, secure Alopecia Areata Registry, Biobank, and Clinical Trials Network, which is essential for advancing research.

 

How can Colinas Farming Company get involved? First, we got excited. We decided to look at awareness month as a way to share our Administrator's storyso our neighbors can better understand alopecia areata.

 

Colinas Farming Company is promoting alopecia areata awareness this fall to educate our audience about this condition. The purpose of this article is to inform our employees, colleagues and visitors of the existence of this condition and that there are organizations who can provide you with more information on how to recognize it, manage it and how to support your friends and family who have it.

 

Denise R. Jackson, Colinas Farming Company Vice President and Administrator, was diagnosed with alopecia areata at age 11. She went into remission at age 13 and remained in remission, for over 30 years. Her condition recurred eight months after a surgery. The photo on the right was taken with her daughter Rachel Jackson, And her best friend at the time, Julia Prentice, when they were 13 years old. Now, they are 27. She and her friend cut their hair for Locks of Love, an organization that makes wigs for disadvantaged children who have medical hair loss such as alopecia areata. They also make wigs for burn patients and cancer patients but their primary recipients are children with alopecia areata.

Alopecia areata is a common autoimmune skin disease resulting in the loss of hair on the scalp and elsewhere on the body. It usually starts with one or more small, round, smooth patches on the scalp and can progress to total scalp hair loss (alopecia totalis) or complete body hair loss (alopecia universalis).

Alopecia areata affects approximately two percent of the population overall, including more than 5 million people in the United States alone. This common skin disease is highly unpredictable and cyclical. Hair can grow back in or fall out again at any time, and the disease course is different for each person.
 
There is no cure for Alopecia Areata.
 

To learn more about alopecia areata, visit the National Alopecia Areata Foundation at www.naaf.org. If you or your children would like to donate to Locks of Love, please visit www.locksoflove.org.

 

Below are other links about alopecia areata, Locks of Love and articles of Denise R. Jackson’s experiences in coping with this condition.

  • Napa Valley - September 1999 
  • Napa Valley Register - May 2000

         

  • Ledger Dispatch - June 2000

     

    

Colinas Farming Company will post future published materials on alopecia areata.